We will be celebrating PoTS UK Awareness Day on 25th October and last year we loved seeing so many buildings lighting up purple. We would love to repeat this again this year on the evening of 24th October, giving you the opportunity to photograph them and post on social media during Awareness Day. These things take a …
Jasmeet, one of our Peer Support Volunteers has kindly shared her story of living with PoTS. This is a great way of telling your story. Please email denise@potsuk.org if you would like to also share your PoTS experience.
On 1st July, PoTS UK were thrilled to have an opportunity to host a hybrid event on PoTS and long covid. This was funded by Health Education England and supported by our fantastic patron, Dr Nick Gall. 100 people registered to attend in person and over 1000 online. This is by far the largest event we …
PoTS UK are thrilled to have been awarded funding from Health Education England to run a fantastic, educational day for healthcare professionals. Post-pandemic it is more evident than ever that there is a significant knowledge gap impacting healthcare professional’s ability to support people with long-term post-viral difficulties. In addition to presenting clear information about the …
Prof Lesley Kavi, trustee and chair of PoTS UK was very happy to be asked to join cardiovascular medicine specialist Dr. Artur Fedorowski, Dr. Tae Chung, director of the Johns Hopkins POTS Program, and Angela Meriquez Vázquez, COVID-19 long hauler and Body Politic president to talk about Covid and non-covid PoTS. You can listen here:https://open.spotify.com/episode/5xDpji0QZuEtpEC9JFibaphttps://podcasts.apple.com/podcast/id1569006716
We are always SO grateful to everyone who fundraises for us and genuinely could not do what we do without you! We would like to introduce Sarah, who has set herself an enormous challenge for the whole of 2022. We hope you can support her, share her page and cheer her on! We all know …
Following the success of our pilot peer support groups in October 2021, we are delighted to be introducing monthly support groups in 2022. Having listened to your feedback, we are breaking the groups up geographically as well as running a couple of additional sessions for specific topics. Whilst we get up and running, the groups …
On PoTS Awareness Day, many of our members managed to persuade local organisations to support PoTS by bathing their buildings in purple. The results were stunning! Thank you to all the businesses and organisations who did this, including Trafford and Altrincham Town Halls, a church in Ross-on-Wye, Kings Lynn Town Hall, Leeds City Museum and …
As many of you will know, last week (10th October) the Mail on Sunday ran a full page article about PoTS. Let’s talk hula hoops, first of all! We know the hula hoop based headline shown on the online version was disappointing and frustrating to say the least but as so many of you have …
Would you like to get involved and help us to raise awareness? Why not send a letter to your local GP surgeries or CCGs and Members of Parliament? We have provided some templates but please feel free to amend these as you see fit. They are just a guide. Some top tips: If you have access to …
