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Impact Report 2023

Our Impact text made of the PoTS UK building Light Up purple photos

Our PoTS UK Impact Report for 2023 is now available to read, celebrating our activities and achievements, highlighting how you have helped our charity and how we have helped you!

Understanding symptom burden and the journey to diagnosis of PoTS

Text stating 'Kings College London'

We were delighted to be joined by Iris Knoop (PhD Candidate & Trainee Health Psychologist) to hear about her latest research. Between November 2021 and December 2022, 149 patients who were due their first appointment with a major PoTS clinic in South East London, kindly took part in a set of studies to investigate the

Walk and Talk for PoTS

Male and female walking a third male walking and pushing a fourth male in a wheelchair

Walk and Talk for PoTS – Get the date in your diary and start planning now! PoTS UK are excited to be announcing our new annual fundraising event, taking place on Saturday 18th May across the UK. Get together with family or friends and ‘Walk and Talk for PoTS’. Jo, our Charity Manager has recorded a short video with all the details.

PoTS UK Charity Survey

A laptop showing the word Survey

We are excited to announce the launch of our PoTS UK 2024 Charity Survey. This survey is for completion by people with PoTS or suspected PoTS and parents and carers of someone with PoTS. It shouldn’t take much more than 5 minutes to complete but it will make such a difference to our team and

PoTS Awareness Day 2023

Bridge over river lit up purple

On 25th October and during the month we marked PoTS Awareness Day across the country! We raised awareness with our #31waystogetinvolved social media posts, we had evening of fun, laughs and prizes at our Awareness Day quiz, we attended an event at Medical Detection Dogs headquarters, we shared information in collaboration with the ME Association,

Peer Support Groups

'Our online Peer Support Groups are back!

We are pleased to announce that our online Peer Support Groups will be starting w/c 24th April. We look forward to seeing you.

Women’s Voices 2023

Lots of females during Women's voices Conference

On International Women’s Day PoTS UK had the opportunity to spend the day with a team of media and creative industry volunteers at an event hosted by Creative Media. We were one of 30 charities who successfully applied for this opportunity to create action plans to raise our profile, build our brand and reach potential

Specalist Listing

Close up of a stethoscope

We are updating our list of clinics and are only able to provide limited information at the moment. Sorry for any inconvience caused.

We now sell Flipsticks!

Image of a flip stick. A flipstick is used to sit on.

We have just added PoTS UK adjustable, folding Flipsticks to our range of merchandise. These are great for use in a queue, on public transport, in airports or in any other emergency when you need to sit down FAST! Most stools are higher leaving users in a standing position. PoTS UK Flipsticks are designed to

PoTS UK/EDS UK webinar for PoTS Awareness Day

The Ehlers Danlos Society zebra logo and name

Kay Julier and Sarah Hamilton from Ehlers-Danlos Support UK and Lesley Kavi from PoTS UK are hosting a joint webinar on Tuesday 25th October at 1pm as part of our Awareness Day. This will include an update on managing PoTS and the opportunity to ask Kay and Sarah questions at the end if you have