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Understanding symptom burden and the journey to diagnosis of PoTS
We were delighted to be joined by Iris Knoop (PhD Candidate & Trainee Health Psychologist) to hear about her latest research. Between November 2021 and December 2022, 149 patients who were due their first appointment with a major PoTS clinic in South East London, kindly took part in a set of studies to investigate the …
Walk and Talk for PoTS
Walk and Talk for PoTS – Get the date in your diary and start planning now! PoTS UK are excited to be announcing our new annual fundraising event, taking place on Saturday 18th May across the UK. Get together with family or friends and ‘Walk and Talk for PoTS’. Jo, our Charity Manager has recorded a short video with all the details. …
PoTS UK Charity Survey
We are excited to announce the launch of our PoTS UK 2024 Charity Survey. This survey is for completion by people with PoTS or suspected PoTS and parents and carers of someone with PoTS. It shouldn’t take much more than 5 minutes to complete but it will make such a difference to our team and …
PoTS Awareness Day 2023
On 25th October and during the month we marked PoTS Awareness Day across the country! We raised awareness with our #31waystogetinvolved social media posts, we had evening of fun, laughs and prizes at our Awareness Day quiz, we attended an event at Medical Detection Dogs headquarters, we shared information in collaboration with the ME Association, …
Peer Support Groups
Women’s Voices 2023
On International Women’s Day PoTS UK had the opportunity to spend the day with a team of media and creative industry volunteers at an event hosted by Creative Media. We were one of 30 charities who successfully applied for this opportunity to create action plans to raise our profile, build our brand and reach potential …
Specalist Listing
We now sell Flipsticks!
We have just added PoTS UK adjustable, folding Flipsticks to our range of merchandise. These are great for use in a queue, on public transport, in airports or in any other emergency when you need to sit down FAST! Most stools are higher leaving users in a standing position. PoTS UK Flipsticks are designed to …
PoTS UK/EDS UK webinar for PoTS Awareness Day
Kay Julier and Sarah Hamilton from Ehlers-Danlos Support UK and Lesley Kavi from PoTS UK are hosting a joint webinar on Tuesday 25th October at 1pm as part of our Awareness Day. This will include an update on managing PoTS and the opportunity to ask Kay and Sarah questions at the end if you have …


