Jo Bullingham

Speak up! Proposed changes to the PIP assessment process

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The government has published a Green Paper which details the proposed changes to the Personal Independent Payment (PIP) assessment process, eligibility criteria and the type of support it plans to offer.   PoTS UK are extremely concerned about how these changes will affect the PoTS community and urge you to take action.  The Green Paper is

Travelling abroad from autumn 2024

Aeroplane wing up in the clouds

Please be aware if travelling abroad from autumn 2024 of the EU’s Entry-Exit System (EES), a new system of biometric border checks. What you need to know: Keep up to date with the latest information here: https://travel-europe.europa.eu/ees_en

PoTS and Long Covid Masterclass

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On 1st July, PoTS UK were thrilled to have an opportunity to host a hybrid event on PoTS and long covid. This was funded by Health Education England and supported by our fantastic patron, Dr Nick Gall. 100 people registered to attend in person and over 1000 online. This is by far the largest event we

PoTS Masterclass for Healthcare Professionals

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PoTS UK are thrilled to have been awarded funding from Health Education England to run a fantastic, educational day for healthcare professionals. Post-pandemic it is more evident than ever that there is a significant knowledge gap impacting healthcare professional’s ability to support people with long-term post-viral difficulties. In addition to presenting clear information about the

PODCAST- Covid and Non-Covid PoTS

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Prof Lesley Kavi, trustee and chair of PoTS UK was very happy to be asked to join cardiovascular medicine specialist Dr. Artur Fedorowski, Dr. Tae Chung, director of the Johns Hopkins POTS Program, and Angela Meriquez Vázquez, COVID-19 long hauler and Body Politic president to talk about Covid and non-covid PoTS. You can listen here:https://open.spotify.com/episode/5xDpji0QZuEtpEC9JFibaphttps://podcasts.apple.com/podcast/id1569006716

Please help us cheer Sarah on and show your support!

Photo of Sarah wearing her PoTS UK Hoody

We are always SO grateful to everyone who fundraises for us and genuinely could not do what we do without you! We would like to introduce Sarah, who has set herself an enormous challenge for the whole of 2022. We hope you can support her, share her page and cheer her on! We all know

PoTS UK Online Peer Support Groups

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Following the success of our pilot peer support groups in October 2021, we are delighted to be introducing monthly support groups in 2022. Having listened to your feedback, we are breaking the groups up geographically as well as running a couple of additional sessions for specific topics. Whilst we get up and running, the groups