Privacy Policy & Cookies
PoTS UK Privacy Policy
PoTS UK is dedicated to protecting your personal data and being honest and transparent about what information we hold about you and how we process this data. We can assure you we strictly comply with all General Data Protection Regulation so your data is safe with us.
Information that PoTS UK collects about you
We may collect information that you share with us, whether this is collected online when you ‘become a member’, register for a meeting, make a donation, or via phone, email, in letters, face to face, or in any other correspondence. We will look after this personal information; this is central to our values as an organisation.
How we use that information
Collecting relevant data from our donors and volunteers helps us to be more efficient and send you relevant information. If you consented to becoming a PoTS UK member we will use your email address to send you news and information about research, patient meetings, fundraising projects and other issues we consider may be of interest to you. We will communicate with you about our work, including how we are spending your money and how you can continue to support us.
We pride ourselves on our ethical approach to fundraising. PoTS UK has never and will never knock on your door, stop you in the street or ring you to ask for donations. We will never release your information to organisations outside of PoTS UK for their marketing purposes.
How we share and store your information
Information about you will only be shared with PoTS UK employees and volunteers. We take all reasonable care to safeguard your personal information through security policies, encrypted computer equipment and secure business processes.
When you have indicated to us that you would like your question, experience or story shared with others, we will publish this on our website or social media platforms.
We will only pass your details on to others without your consent in exceptional circumstances when it is thought that there is likely to be significant self harm or harm to others.
PoTS can be a long-term condition for some people. We will store your details so that we can update you about PoTS issues of interest to you until you tell us that you would no longer like to receive this information.
Sensitive information
Confidentiality will always be respected when you share sensitive information about you or a family member or friend with us. We will only share that information with PoTS UK volunteer advisors that may be able to help you.
Your choices regarding the information you provide to us
You have a right to request a copy of all the information we hold about you. You may request to amend this information or remove it (unless there is a legal requirement for us to keep it). Email info@potsuk.org with your request.
How you can change your mailing preferences
We will make it easy for you to tell us how you want us to communicate with you, including how to opt out from future communications. Your request will be dealt with promptly. Please email info@potsuk.org
You can be confident that:
- We only use personal information in the ways we need to and that is expected of us.
- Our lawful basis is consent and legitimate interest
- We do not sell information about you to anyone.
Additional information for healthcare professionals.
Please be assured that we will not share your personal data with anyone without your consent.
We will not place your details on our list of healthcare professionals without your express consent.
We will direct patients to services where it is public knowledge that a service exists, but we will not share private details such as email address without consent.
We will hold information about you until we learn that you are no longer work or have an interest in PoTS, or until you ask us to remove information about you.
Please feel free to contact us at any point if you would like more information about our privacy policy. Please email info@potsuk.org and we will be happy to help.
Cookies
Sites made by Creative Stream Ltd use cookies, and if you turn off or block some cookies, then the site might not function as expected.
Site owners always look to create better content for you (that’s why you came to this site), so if you remove all cookies, you may be signed out of websites, your saved preferences could be deleted, and websites won’t function as you expect. The accessibility widget and the ability to change language (if enabled on this site) may cease to function, and videos and maps may not appear.
Cookies change over time depending on the content and the functionality of the site and the service(s) provided for you, so the list of cookies below is likely to exceed those actually found. You can find out what cookies are used by clicking on the padlock in the address bar. Creative Stream sites can utilise (but are not limited to) cookies for social media, language translation, payment portals, subscriptions, form submissions, and interactive maps. Our sites also use analytic cookies to provide you with better content, and cookies to monitor the smooth running of the site.
As per the ICO cookie page: To find out more about cookies, including how to see what cookies have been set, visit www.aboutcookies.org or www.allaboutcookies.org
Detailed cookies information
CookieControl
Cookie Control is the widget on this site that enables you to make choices about cookies and is used by the ICO (the body that governs cookie policy). This cookie is used to remember a user’s choice about cookies on this site, and where users have previously indicated a preference, that user’s selection will be stored in this cookie.
__stripe_mid to provide fraud prevention and lasts one year (source)
Generated by the 3rd party accessibility tool, UserWay.
They said “In regards to cookies, we don’t store any personal data, the widget only saves the session information from the user’s preferences” e.g. A blind person who had the screen reader active.
Someone with visual issues who set the font to be bigger. The cookies that we found with their product are:_cq_duid is a session cookie (expires when you close your browser)._cq_suid is a session cookie (expires when you close your browser).
Google: Language, Maps, and Analytics
This cookie is used to remember any selection a user has made about language on this site, using the Google language selector, so that the site will be shown in their chosen language when returning to the site. _ga to distinguish unique users by assigning a randomly generated number as a client identifier, and expires in 2 years (source)_ga_<container-id> Used to persist session state and expires in 2 years (source)_gali is used by Google Analytics to determine which links on a page are being clicked (source)_gat_* is used to limit the number of user requests in order to maintain a website’s performance, and it expires after 1 day. It does not store any user information (source)_gid to store and update a unique value for each page visited, and expires after 1 day (source)__utma This cookie is what’s called a “persistent” cookie, as it never expires. This cookie keeps track of the number of times a visitor has been to the site pertaining to the cookie, when their first visit was, and when their last visit occurred. Google Analytics uses the information from this cookie to calculate things like Days and Visits to purchase.__utmb and __utmc working together to calculate how long a visit takes. __utmb takes a timestamp of the exact moment in time when a visitor enters a site, and expires at the end of a session.__utmc takes a timestamp of the exact moment in time when a visitor leaves a site (it doesn’t know when a user closes their browser or leaves a website, so it waits 30 minutes for another pageview to happen, and if it doesn’t, it expires)._utmt stores the number of requests, and expires after 10 minutes.__utmz This keeps track of where the visitor came from (e.g., what search engine you used, or link you clicked, or what keyword you used, and, where they were in the world when they accessed a website). It expires in 6 months. (source)
These cookies are used to collect information about how visitors use our website. We use the information to compile reports and to help us improve the website. The cookies collect information in a way that does not directly identify anyone, including the number of visitors to the website and blog, where visitors have come to the website from and the pages they visited. Read Google’s overview of privacy and safeguarding data and Google’s advertising and measurement cookies
__Secure-3PAPISID shows personalised adverts, duration 2 years (source)
__Secure-1PSIDCC shows personalised adverts, duration 2 years
SSID Google ads optimisation – duration 2 years (source)
SID Google ads optimisation – duration 2 years (source)
APISID Google ads optimisation – duration 2 years (source)
SAPISID Google ads optimisation – duration 2 years (source)
__Secure-1PAPISID Used by Google for targeting purposes to build a profile of the website visitor’s interests in order to show relevant & personalised Google advertising – duration 2 years (source)
__Secure-3PSIDCC Google cookie required to use website options and services – duration 1 year (source)
UULE Google – shows you results that are relevant to your location – expires in 6 months (source)
1P_JAR Google ads duration one month (source)
OGPC Google maps – duration 1 month (source)
SOCS – Google consent cookie – to store a user’s state regarding their cookies choices – duration 2 years (source)
AEC ensure that requests within a browsing session are made by the user, and not by other sites. Duration 6 months (source)
OGP = google – activate and track Google Maps functionality (source)
SEARCH_SAMESITE allow servers to mitigate the risk of information leakage attacks by asserting that a particular cookie should only be sent with requests initiated from the same registrable domain.
Tk_tc by Jetpack to store the user’s usage history (source)
Tk_r3d by Jetpack for statistics, duration 3 days (source)
Tk_or by Jetpack for WooCommerce, duration 5 years (source)
bp-groups-filter from BuddyPress and used for forums
bp-groups-scope from BuddyPress (source)
Embedded content (e.g Youtube, Vimeo, Social Media, and Maps)
There may be content that is embedded in a Creative Stream site from a third party. When this happens we don’t have control over the embedded content cookies from these external websites, and you’ll need to take action yourself. You can go to the Creative Stream site to find out more about how to take control. The owners of this site may embed videos from their own official YouTube channel using YouTube’s privacy-enhanced mode. This mode may set cookies on your computer once you click on the YouTube video player, but YouTube will not store personally-identifiable cookie information for playbacks of embedded videos using the privacy-enhanced mode. Read more at YouTube’s embedding video information page
PREF Expires after eight months (used to store information such as your preferred page configuration and playback preferences like explicit autoplay choices, shuffle content, and player size)
- PREF Expires after eight months (used to store information such as your preferred page configuration and playback preferences like explicit autoplay choices, shuffle content, and player size)
- VISITOR_INFO1_LIVE expires 6 months after a user’s last use (used to show personalized content such as recommendations on YouTube based on past views and searches)
- remote_sid expires at the end of your session
- NID expires 6 months after a user’s last use (used to show Google ads in Google services for signed-out users)
- DEVICE_INFO Used to track user’s interaction with embedded content duration 179 days (source)
- LOGIN_INFO used to play YouTube videos embedded in the site
- YSC used by YouTube to store and track interaction – session cookie (source)
Vimeo cookies: vuid
Vimeo’s embeddable video player uses first-party cookies that they consider essential to the video player experience. They state they do not use third-party analytics or advertising cookies when their video player appears on a third-party website, unless (i) the website visitor is logged in to their Vimeo account and (ii) the user who embedded the video has not implemented the DNT Parameter (source)
Functional cookies
SIDCC (source)
HSID to provide fraud prevention expires in 2 years (source)
wordpress_test_cookie is a functional, session cookie (source) to read if cookies can be replaced
woocommerce_items_in_cart is a functional, session cookie (source)
Woocommerce_cart_hash is a functional, session cookie to store items in the shopping cart (source)
wp_lang WordPress cookie to store language settings, and lasts for the session (source)
WordPress_test_cookie WordPress cookie to read if cookies can be placed, and lasts for the session (source)
cookie_notice_accepted to read if cookies can be placed – functional and persistent (source)
Session Cookies
PHPSESSID
The PHPSESSID cookie is native to PHP and enables websites to provide functions across pages. It is used to establish a user session and to pass state data via a temporary cookie, which is commonly referred to as a session cookie (expires when you close your browser). (source)
wordpress_sec_ Is to provide protect against hackers and store account details (source)
WooCommerce: Cookies from WooCommece such as woocommerce_cart_hash and woocommerce_items_in_cart are linked to the items in your basket, so removing/declining them means that any purchases (free or paid) may not get to the checkout.
pmpro_visit Cookies from pmpro are linked to your membership to this site.
_grecaptcha to provide spam protection (source)
Cookies that only affect those who have admin type permissions on the site
wp-settings-1 and wp-settings-time-1 are used to customize your view of admin interface, and possibly also the main site interface.
wordpress_logged_in_ a functional cookie to store logged-in users (source)
tk_ai from Jetpack, stores a randomly-generated anonymous ID. This is only used within the admin area and is used for general analytics tracking (source)
Details correct as of 10.02.23