On PoTS Awareness Day, many of our members managed to persuade local organisations to support PoTS by bathing their buildings in purple. The results were stunning! Thank you to all the businesses and organisations who did this, including Trafford and Altrincham Town Halls, a church in Ross-on-Wye, Kings Lynn Town Hall, Leeds City Museum and …
As many of you will know, last week (10th October) the Mail on Sunday ran a full page article about PoTS. Let’s talk hula hoops, first of all! We know the hula hoop based headline shown on the online version was disappointing and frustrating to say the least but as so many of you have …
Would you like to get involved and help us to raise awareness? Why not send a letter to your local GP surgeries or CCGs and Members of Parliament? We have provided some templates but please feel free to amend these as you see fit. They are just a guide. Some top tips: If you have access to …
Our stories continue to be a very popular section of our website and we would love to share more. We love the idea of having a new one to add each day during Dysautonomia Awareness Month. We appreciate this takes a lot of courage and thought and for some, the time isn’t right. Please only …
We are very excited to confirm we will be holding 5 pilot peer support groups throughout October (Dysautonomia Awareness Month) and if successful, we would hope to roll these out further on a more regular basis from January 2022. Our survey back in January highlighted the real desire for these groups and we always aim …
We are delighted that our PoTS retreat will be taking place on Sunday 24th October 2021. You can choose to attend in person (at the Cotswold De Vere Water Park Hotel) or attend online. Sessions will all stream live via Zoom and recordings will be sent to all attendees after the event so you can catch up …
Dr Amy Small, a GP in Scotland who is raising awareness about long COVID and PoTS kindly agreed to answer our questions about living with long COVID and developing PoTS as a result. Please can you tell us a bit about you/your background? I’m Amy, I’m a mum of two boys married to a Frenchman and I’ve been a doctor for …
Our next webinar will be held on Friday 2nd July at 2pm. PoTS UK will be joined by Dr Boon Lim and Dr Melanie Dani who will discuss: ‘Long Covid and the autonomic nervous system – a top-down and bottom-up approach’. To Register: https://us02web.zoom.us/webinar/register/WN_WQMUjxgtRaaEgyZi_7KgCQ There will be time to ask questions at the end of the session …
Due to some very generous donors including the Hinduja Foundation, we are delighted to be able to offer the recently published medical textbook: ‘PoTS: A concise and practical guide to management and associated conditions’ at a considerably reduced price. It costs £119.99 (hardcover) but we are thrilled to offer it to patients for £35 including postage. A while ago, …
Thank you to everyone who supported our team and donated to our #CaptainTom100 challenge last weekend. We raised a fantastic £1102.48 + gift aid! Thank you to the Stratford Herald for including us in your paper and helping to spread the work about PoTS!
