We were extremely disappointed to read an article by Kathleen Stock, published in The Times on 5th August 2026, titled Why Are Young Women Using Walking Sticks? The article risks reinforcing harmful misconceptions about people with Postural Tachycardia Syndrome (PoTS), a real, diagnosable and debilitating condition affecting the autonomic (involuntary) nervous system. Our response to …
PoTS UK drop-in session at Holyrood on 30th September – email your MSP to seek their support. We’re asking everyone living in Scotland to email their Member of the Scottish Parliament (MSP) and encourage them to attend the PoTS UK drop-in session at Holyrood on 30th September. This is an important opportunity for MSPs to …
Please email your MP and ask them to sign the PoTS Early Day Motion, tabled by Cat Smith MP. We want as many MPs as possible to support the motion and call for action by writing to their local Integrated Care Board (ICB) or Health Board. ⏱️ It takes less than a minute and really …
PoTS UK In-Person Peer Support & Practical Advice Event Join us for a relaxed afternoon of peer support, practical advice and inspiring talks from healthcare professionals and people living with PoTS. Whether you’re newly diagnosed or have been managing PoTS for years, this is a welcoming opportunity to: 🗓️ Sunday 15th November🕐 1:00pm – 5:30pm📍 …
It has been brought to our attention that there is some incorrect information circulating regarding sodium/salt quantities for PoTS patients. We have not seen the journal article as it has been withdrawn for the error to be corrected. However, we are conscious that this misinformation will have been used/quoted on several other websites. The original article (https://onlinecjc.ca/article/S0828-282X(19)31550-8/fulltext) correctly states 10g salt, but where it has …
In May, PoTS UK hosted a Masterclass for healthcare professionals – “Back to Basics and New Insights”, designed to support clinicians in developing their understanding of PoTS. For healthcare professionals in primary and secondary care who were unable to attend, recordings are now available to purchase from our PoTS UK Shop. Whether you are new …
On Thursday 14th May, we held our PoTS Masterclass – Back to Basics and New Insights, an incredible opportunity to educate healthcare professionals, share knowledge, and raise awareness of PoTS, helping to improve understanding, care, and support for patients. The day brought together a fantastic multidisciplinary audience, including: Attendees heard from PoTS expert Prof Satish …
PoTS UK was delighted to meet with Sharon Hodgson MP (Parliamentary Under-Secretary), Cat Smith MP and other members of the Department of Health and Social Care, at Westminster on Tuesday. This meeting followed the Westminster Hall debate held in October. It was a valuable opportunity to discuss the ongoing lack of NHS services for both …
PoTS UK is often criticised for focusing too heavily on England, but we would like to assure you that our commitment to improving services is equal across the United Kingdom. Much of our recent progress has taken place in Scotland, and this update highlights that work while also recognising the wider UK project. Earlier developments in Scotland involved the petition initiated by Jane Clarke in July 2022, calling on the Scottish …
At PoTS UK, we recognise that many people living with PoTS experience challenges within healthcare settings due to limited awareness and understanding of the condition and how it affects daily life. This can unfortunately lead to: We also recognise that the need to repeatedly explain the condition and care requirements can be physically and mentally …
