On Wednesday 12th March the PoTS UK team made up of trustees, nurse specialists, consultants and staff went to Portcullis House to meet MPs to discuss the inequitable access to healthcare for people with PoTS. We were delighted to welcome over 40 MPs who showed great interest in the challenges we are facing and seemed …
So far you have emailed 554 MPs across the UK, but this means 96 MPs have still not been contacted. To ensure that every MP is aware of our drop in session at Portcullis House on 12th March then we still need to reach out to these MPs: Do you live in their constituency, or …
Sophie West recently got in touch with her petition. We had already started ours so decided to join forces and share Sophie’s petition – Postural Tachycardia Syndrome: fund training and facilities. Please tell us a bit about you? My name is Sophie, I’m 22 from a small town in Shropshire. I love anything to do …
We have made some changes to our Parliamentary Campaign to make the process easier and quicker. We need your help now! After typing in your postcode below, a pre-written template will appear. This can be sent as it is or you may wish to consider personalising your message. Ideas on what you may want to …
Our PoTS UK Impact Report for 2024 is now available to read, celebrating our activities and achievements, highlighting how you have helped our charity and how we have helped you!
If you have a young person due to sit exams this year and have not already spoken to their school, now is the time to do so as schools have to submit requests to the exam board they are using! We are very grateful to Jane who recently contacted us. She works in an exam …
We are excited to announce the launch of our PoTS UK 2025 Survey. This survey is for completion by people with PoTS or suspected PoTS and parents and carers of someone with PoTS. Your honest feedback is so important and by completing the survey, you will enable us to adapt and develop the services we …
Thank you to everyone who raised awareness on Friday 25th October, the day was huge success with over 60 buildings throughout the UK ‘Lighting Up In Purple’. We are really grateful to all of you who took the time to visit buildings near to you and shared you photos throughout the day and evening. We …
Thank you to those who have shared their story with the media, raising awareness of PoTS and Awareness Day! Our lovely volunteers have been working hard to raise awareness in those areas that are ‘Lighting Up in Purple’ on 25th October. So far we have had coverage in: We hope that more of your stories …
Come and join us on 23rd October at 7.00pm to learn more about Hypermobility. We are delighted to welcome The HMSA who will deliver a presentation about Hypermobility and then take time to answer your questions. Their talk will cover: There will then be time for questions at the end. Please register here. We will …
