Every year on the 25th October we celebrate PoTS Awareness Day. As October is Dysautonomia Awareness Month we make sure we raise awareness of PoTS every day throughout the month – 31-days jam-packed with loads to get involved with! Social Media: Each day we will share: Every time you share a post it is helping …
We are delighted to confirm that Cat Smith MP was successful in securing a debate on PoTS at Westminster Hall on 14th October at 11am. We now need your support and urge you to write to your MP requesting that they attend this debate. We have produced a template letter and it can be done using our …
A 4-Week Journey to Reconnect with Your Nervous System During Awareness Month Victoria, yoga and breathwork teacher, will be holding 4 webinars to help you learn valuable tools to connect with and tune into your body, boost internal resilience, and help manage the symptoms of PoTS. You will explore broader themes drawn from somatic / …
We were really thrilled with the ITV news coverage that went out across most regions (sadly this doesn’t cover London and Manchester.) We would like to say a massive thank you to all of the volunteers, and those selected from our survey, who spoke to ITV and shared their stories, raising greater awareness of PoTS. …
During the month of October our lovely volunteers will be hosting 6 webinars based on their PoTS experience. We have hopefully structured these to cover topics that will be of most benefit to you. Each webinar is based on our volunteers own experiences and they will not be giving any medical advice. We appreciate that …
Please visit our webpage to see how you can get involved in our Awareness Day Light Up. Every building or landmark that lights up in purple is helping to: Together, we can turn the UK purple in support of our incredible PoTS community.
Our GOV.UK petition is asking the Government to fund training for all healthcare providers on spotting and dealing with Postural Tachycardia Syndrome (PoTS) and facilitate the correct form of healthcare for people with PoTS! This petition closes on Wednesday 30th July and we need as many signatures as possible to support our argument as we …
When taking any medication, we advise you to read up about it. There is some information on our website and more detail on the leaflet that you should receive with your medication. Medications need to be reviewed regularly, initially to assess their benefit and side effects and to titrate the dose if needed. Some medicines …
Save the date! Following the huge success of last year’s Walk and Talk fundraiser, we are will be repeating it again this year over the first Bank Holiday 3rd-5th May. Please ask your family and friends to join you on one of these 3 days for your fundraising and awareness walk. We hope that you …
A shared statement from The Ehlers-Danlos Support UK, PoTS UK and The Hypermobility Syndromes Association (HMSA). We have recently reviewed the podcast and book from Dr Suzanne O’Sullivan about the culture of medical diagnosis. It has some concerning themes within it and a lack of understanding of complex chronic conditions like Ehlers Danlos Syndrome (EDS), …
