At the beginning of the year we asked for your feedback on our Online Peer Support Groups. We listened to what you had to say and are now implementing changes to hopefully meet your needs as best as we can. As from 1st October we are moving away from the regional groups, changing these to …
Our lovely volunteers have been working hard to get buildings to ‘Light Up in Purple’ for Awareness Day. We have had an amazing response and so far over 40 places have confirmed that they will Light Up on 25th October. We need your help! We are looking for people who live locally to the places …
The government has published a Green Paper which details the proposed changes to the Personal Independent Payment (PIP) assessment process, eligibility criteria and the type of support it plans to offer. PoTS UK are extremely concerned about how these changes will affect the PoTS community and urge you to take action. The Green Paper is …
Please be aware if travelling abroad from autumn 2024 of the EU’s Entry-Exit System (EES), a new system of biometric border checks. What you need to know: Keep up to date with the latest information here: https://travel-europe.europa.eu/ees_en
We have been overwhelmed by the amazing support that the PoTS community have shown for our Parliamentary Campaign. We are extremely grateful to each and every one of you who took the time to contact your MP. As you are aware, we now have a date for the General Election and this will mean that …
Thank you to all of you who took part in our Walk and Talk for PoTS last weekend. Everyone one who walked raised further awareness of PoTS, which is something we are all striving towards! You raised over £4000 which is amazing. We really appreciate your continued support. Please take a look at our video. …
On Sunday 5th May Jo, Denise, Mell, Helen and Nicola ran the Birmingham Great 10k Run for PoTS UK. It was hot and hilly but the support was fantastic, we had a great day! We were sorry to have missed Izzie, who did an amazing job running for PoTS UK despite struggling with PoTS flares …
On Friday 19th April we held an educational training event for nurses and healthcare professionals who were interested in learning more about Autonomic Dysfunction including diagnosis, management and treatment. Nearly 300 people registered for the event both in person and online, to listen to sessions led by PoTS experts Mell Ferrar, Nicki Williams, Dr Sam …
Suggestions from a young person for young people! We are very grateful to Sophie who recently contacted us about the challenges she has faced at school in managing her PoTS. As a young person with PoTS Sophie understands what a struggle school can be, particularly in a school that doesn’t understand PoTS! After undertaking plenty …
We are often asked the following questions so we thought it would be good to share our answers with you. What do you do as an organisation to help people with PoTS? We aim to educate, support and raise awareness to improve the lives of those with PoTS. We work with healthcare professionals and other …
