The wait is over… and we couldn’t be more excited to share this with you. After months of work behind the scenes, we are proud to launch our brand new 13-part Educational Programme for People with PoTS. Created to support, empower, and guide you every step of the way. This series of videos will hopefully …
At PoTS UK, we know how important it is for healthcare professionals to better understand Postural Tachycardia Syndrome (PoTS). That’s why we’re asking YOU, our incredible community, to help us spread the word. We are encouraging you to email or write to your GP and let them know about the upcoming PoTS Masterclass: Back to …
PoTS UK is pleased to launch our 2026 charity survey, designed to better understand the needs of people living with PoTS, those who suspect they may have the condition, and the parents and carers who support them. Your feedback is incredibly important. By sharing your experiences and insights, you will help us shape and improve …
Lilianna Mint is a Psychology graduate and has PoTS. For her undergraduate research project, she explored how women with PoTS navigate support for the condition and recruited participants with the help of PoTS UK who advertised her study on social media. Lilianna received a First-class grade for this project and was also awarded a Citation …
Following on from our successful parliamentary campaigning in 2025, PoTS UK are now funding a project run by Louise Gordon. Louise is writing to all Intergrated Care Boards and Health Boards (the people who buy NHS services for patients) across the UK, holding them to account for the inadequate services for people with PoTS. We are using the …
We are proud to share our 2025 Impact Report, highlighting the difference our PoTS community has made together over the past year. Thanks to the dedication of our supporters, volunteers, healthcare advisors, and fundraisers, 2025 has been a year of continued progress in raising awareness, improving understanding, and strengthening support for people living with PoTS. …
We are incredibly grateful to Holly for sharing her story of hope, resilience and determination. We hope her words resonate with you and that you find comfort and connection in how she’s faced her challenges. PoTS UK Volunteer, Holly shares her experiences and tells us why she is determined not to let her diagnosis define …
We are delighted to share that Historic Royal Palaces has kindly offered PoTS UK an amazing free day out at Hampton Court Palace for young people (under 18) living with PoTS and their families. This special day will be a chance to meet others facing similar challenges, connect with families who understand, and begin building …
A small team within PoTS UK are working to create what we have named the ‘PoTS Passport’. This will be a document that you can fill in and take with you to appointments as well as having embedded in your notes during a hospital stay or surgery. We hope this will ensure that the people …
Today we are proud to launch the Overlapping Illness Alliance (OIA), a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions. Check out our website.The OIA are hosting a drop-in session at the Houses of Parliament on Tuesday 25 November to inform MPs about these illnesses, and …
