PoTS Passport – Have Your Say!

A small team within PoTS UK are working to create what we have named the ‘PoTS Passport’.

This will be a document that you can fill in and take with you to appointments as well as having embedded in your notes during a hospital stay or surgery. We hope this will ensure that the people in charge of your care are aware of what you need day to day.

This document will be able to be used even if the appointment or hospital stay isn’t PoTS related. We hope it will ensure you are receiving the correct treatment for whatever reason you are being seen without affecting your baseline symptoms.

We are aware that many healthcare professionals know very little about PoTS and similar conditions so hope that having a document with the important information will prevent patients from having to explain to each person treating you, making it an easier and less stressful experience.

As we are still early within the process, we are seeking your views to to get a better idea of what you want to see included. If you could spend a couple of minutes to complete our survey, we would really appreciate it!