October – 31-days jam-packed with loads to get involved with!
Every year on the 25th October we celebrate PoTS Awareness Day.
As October is Dysautonomia Awareness Month we make sure we raise awareness of PoTS every day throughout the month – 31-days jam-packed with loads to get involved with!
Each day we will share:
- A fact about PoTS – great to share with family and friends to help them understand the condition and your daily struggles
- Your insightful quotes about the reality of living with PoTS
- Amazing videos of you telling us about what PoTS looks like to you. We would happily welcome any more recordings, please email denise@potsuk.org for further details.
Every time you share a post it is helping to raise awareness. We appreciate that social media is going to be busy during October, but please support us by sharing as much as you can to get the word out.
Webinars:
- Our lovely volunteers will be hosting 6 webinars throughout the month sharing their experiences of:
- Click on the links above to register or to watch the recordings if they have already taken place.
- On Tuesday 21st October at 7.30pm, we will be joining forces with The HMSA to discuss PoTS, Hypermobility and what we know about the link between them. Register here.
- At the end of October Deborah Bircham, Community Support Coordinator for Mast Cell Action, will be joining us for a webinar – An introduction to Mast Cell Activation Syndrome (MCAS)
Yoga Introduction Sessions:
- Starting on Wednesday 1st October, at 9am, yoga and breathwork teacher Victoria, will be holding a series of 4 webinars to help you learn valuable tools to connect with and tune into your body, boost internal resilience, and help manage the symptoms of PoTS – Rooted and Regulated: A 4-Week Journey to Reconnect with Your Nervous System
Please register for the above webinars by clicking on the relevant links.
Keep an eye out on our social media and website for other webinars that we are busy organising.
Lighting Up In Purple:
PoTS UK is committed to raising awareness of PoTS and since our first Awareness Day in 2019, we have had a growing number of buildings and landmarks across the country #LightUpForPoTS.
- This year we already have over 60 buildings and landmarks who have confirmed they will Light Up In Purple on 25th October
- If you can think of a place that may light up, we have created a template email for you to send
Other ways to Light Up Purple this October:
- 💡 Light up your window with a small purple LED lamp, fairy lights, or a coloured bulb
- 🏡 Decorate your home with purple accents during PoTS Awareness Month – even a porch light or purple ribbon display can start conversations
- 🍽️ Ask your local businesses to display purple lights or decorations for a night or the whole month!
- 🪧 Print and display some of our downloadable resources and ask work/local businesses etc to do the same
- 📸 Share your purple setup on social media using #LightUpForPoTS and tag us @PoTSUK
Other Events:
- Test your PoTS knowledge with our fun 10 question quiz. We will launch this on social media during the first week of October – so keep an eye out! We will be holding a prize draw for everyone who completes the quiz, a great opportunity to win some PoTS UK goodies!
- Anyone who purchases merchandise during the month will go in to a prize draw to win a bundle of PoTS UK goodies
- A fabulous new item will be added to our shop during the month – so keep your eyes peeled!
Remember – PoTS UK is a small charity making a big difference for people living with Postural Tachycardia Syndrome.
💜 Every donation, no matter the size, helps us provide support, raise awareness, and fund vital resources for our community.
👉 If you’re able, please consider donating to PoTS UK this month to help us continue our work. Together, we can make change happen.
Please check out our Impact Report to see how the amazing money that you donate is spent.