Stories

Hi, my name is Emma, aged 17.  I am sharing my story in the hope that it helps anyone else at the beginning of this difficult...

In the summer after my first year at university, is when the chest pain and palpitations started. They seemed to only be triggered by heat. I would...

Hi – my name is Maia and I started getting PoTS symptoms aged 9. For a long time, my episodes were put down to hormones and a growth spurt....

I’m Zoe and I’m 27 years old. I felt like now was the best time to share my story as we’re fast approaching the 10th anniversary of ...

I was misdiagnosed for 5 years to be told it was anxiety. It all started half way through my pregnancy, I began passing out when laying flat on my...

Hi, my name is Helen & I’m 31 years old. My PoTS symptoms started when I was unwell with Covid in March 2020. I remember feeling faint, having...

Hi, I’m Katie and I’m 26 years old. In summer 2016, life looked pretty good. I’d survived 3 years of a nursing degree and had just started my...

If you saw me walking down the street, you’d think I look relatively “normal”. And that is because I am “normal”.  ...

Since being a teenager I always was aware of my super fast heart, but wasn’t diagnosed officially till the age of 28. When I was in my teens...

My story began at 13 (2007). I was fit, heathy and enjoying my life as a competitive swimmer. One evening, I found myself in the medical room of the...