Maia

Hi – my name is Maia and I started getting PoTS symptoms aged 9. For a long time, my episodes were put down to hormones and a growth spurt. Fast forward a year and I was having episodes 3-4 times a week. After pushing for answers with the NHS, I was diagnosed with PoTS in 2021. We were so relieved to finally have a diagnosis. The racing heart, sweating, fainting, brain fog, blurred vision, and fatigue was life-changing for me. At 11 years old I have missed out on so much.

My education is greatly impacted by missing school and the hardest part is socialising with my friends which has become extremely difficult for me. The anxiety takes over of wondering when it is going to happen next. I am now medicated for PoTS but have been having unexplained non-epileptic seizures so battling both at a young age is a daily struggle for me.

My family, friends, and school teachers have been an amazing support in my journey.

I have a long way to go to live a normal everyday life but I won’t give up!