Walk and Talk for PoTS – Get the date in your diary and start planning now! PoTS UK are excited to be announcing our new annual fundraising event, taking place on Saturday 18th May across the UK. Get together with family or friends and ‘Walk and Talk for PoTS’. Jo, our Charity Manager has recorded a short video with all the details. …
We are excited to announce the launch of our PoTS UK 2024 Charity Survey. This survey is for completion by people with PoTS or suspected PoTS and parents and carers of someone with PoTS. It shouldn’t take much more than 5 minutes to complete but it will make such a difference to our team and …
On 25th October and during the month we marked PoTS Awareness Day across the country! We raised awareness with our #31waystogetinvolved social media posts, we had evening of fun, laughs and prizes at our Awareness Day quiz, we attended an event at Medical Detection Dogs headquarters, we shared information in collaboration with the ME Association, …
We are pleased to announce that our online Peer Support Groups will be starting w/c 24th April. We look forward to seeing you.
On International Women’s Day PoTS UK had the opportunity to spend the day with a team of media and creative industry volunteers at an event hosted by Creative Media. We were one of 30 charities who successfully applied for this opportunity to create action plans to raise our profile, build our brand and reach potential …
We are updating our list of clinics and are only able to provide limited information at the moment. Sorry for any inconvience caused.
We have just added PoTS UK adjustable, folding Flipsticks to our range of merchandise. These are great for use in a queue, on public transport, in airports or in any other emergency when you need to sit down FAST! Most stools are higher leaving users in a standing position. PoTS UK Flipsticks are designed to …
Kay Julier and Sarah Hamilton from Ehlers-Danlos Support UK and Lesley Kavi from PoTS UK are hosting a joint webinar on Tuesday 25th October at 1pm as part of our Awareness Day. This will include an update on managing PoTS and the opportunity to ask Kay and Sarah questions at the end if you have …
We will be celebrating PoTS UK Awareness Day on 25th October and last year we loved seeing so many buildings lighting up purple. We would love to repeat this again this year on the evening of 24th October, giving you the opportunity to photograph them and post on social media during Awareness Day. These things take a …
Jasmeet, one of our Peer Support Volunteers has kindly shared her story of living with PoTS. This is a great way of telling your story. Please email denise@potsuk.org if you would like to also share your PoTS experience.
