Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition.

Join us in Stratford upon Avon!

Please join us for our PoTS UK In Person Peer Support and Practical Advice event.

This is a relaxed and informal afternoon focused on peer support, connection and practical advice. Come along to chat with people who truly understand life with PoTS, ...share experiences, ask questions and hear from both people living with PoTS and healthcare professionals.

Whether you’re newly diagnosed, awaiting diagnosis or have been living with PoTS for many years, everyone is welcome.

📍 Rosebird Community Hall, Stratford-upon-Avon, Warwickshire
📅 Sunday 15 November 2026
⏰ 1pm–5:30pm

You can bring a family member or friend, but everyone attending must have their own ticket. Due to limited space, we ask that you bring no more than one guest unless essential.

☕ Tea, coffee, soft drinks and afternoon treats are included!

We’ve kept ticket prices as low as possible to make the event accessible. If you’d love to attend but the cost is a barrier, please get in touch with us.

🎟️ Register here: https://potsmeetup.eventbrite.co.uk

We hope to see you there!

#PeerSupport #PoTSCommunity #PoTSMeetUp #PoTSUK

RUN FOR PoTS UK IN 2027! 🏃🏾‍♂️

We have one charity place available for each of these fantastic events:

🏃 Run South London Half Marathon – 14th March 2027
🏃 Great Birmingham Run Half Marathon – 2nd May 2027
🏃 Great Birmingham Run 10k – 2nd May ...2027
🏃 Great Manchester Run 10k – 23rd May 2027

Want to take on a challenge while helping raise awareness of PoTS?

Complete the form below for your chance to run for PoTS UK and help us support the thousands of people affected by PoTS across the UK.

🎯 Fundraising commitment:
We kindly ask each participant to commit to raising a minimum of £500.
Every penny you raise will go directly towards supporting PoTS UK’s vital work. 🙌

⏰ Applications close at midday on Monday 31st August.

👉 Apply here: https://www.surveymonkey.com/r/W6VTSQZ

Could you take on the challenge for PoTS UK?

#RunForPoTS #GreatManchesterRun #GreatBirminghamRun #RunSouthLondon #UKCCharity

🎓 Starting or returning to university with PoTS?

Whether you’re preparing for your first term, moving away from home for the first time, or returning to your studies, living with PoTS can bring unique challenges. The good news is that you don’t have to face them alone.

Join... our PoTS & University Online Peer Support Group on Monday 10th August at 7:00pm and connect with others who understand what it’s like to balance university life with PoTS.

This friendly online session is a great opportunity to talk about:
💜 Moving away from home for the first time
🏠 Student accommodation
📚 Reasonable adjustments and disability support at university
💷 Benefits and financial support you may be entitled to
🤝 Managing studies, making friends and looking after your health

Whether you have questions, want to share your own experiences, or simply listen to others, you’ll be warmly welcomed.

📅 Monday 10 August
🕖 7:00pm
💻 Online

🎟️ Book your free place here:
https://www.eventbrite.co.uk/e/pots-and-university-pots-uk-online-peer-support-group-tickets-1991911511953?aff=oddtdtcreator

We look forward to seeing you there!

#PosturalTachycardiaSyndrome #University #StudentLife #ReasonableAdjustments #StudentSupport

Help Us Turn the UK Purple for PoTS Awareness Day! 💜

Every year on 25 October, we celebrate PoTS Awareness Day by encouraging landmarks and buildings across the UK to Light Up in Purple.

Since our first campaign in 2019, more and more iconic buildings have taken part and we’d... love to make this year’s campaign our biggest yet!

✨ You can help by contacting local landmarks, businesses or venues and asking them to light up purple on 25 October.

Find everything you need, including email templates and guidance:

https://www.potsuk.org/light-up-for-pots-2025/

See which buildings have already confirmed they’ll be taking part:

📍 https://www.potsuk.org/buildings-lighting-up-by-region/

Every building that lights up in purple helps to:
💜 Raise awareness of PoTS.
💜 Encourage earlier diagnosis and better support.
💜 Show everyone living with PoTS that they are seen, supported and not alone.

Together, let’s turn the UK purple this PoTS Awareness Day!

#PoTSAwarenessDay #LightUpForPoTS #TurnTheUKPurple #PosturalTachycardiaSyndrome #PoTS

Ask your MP to sign the PoTS Early Day Motion!

Please email your MP and ask them to sign the PoTS Early Day Motion, tabled by @catsmithmp

We want as many MPs as possible to support the motion and call for action by writing to their Integrated Care Board or Health Board.

...⏱️ It takes less than a minute and really can make a massive difference!

By playing your part, you can help us drive positive change for people living with PoTS. 💜

👉 Take action today: https://potsuk.eaction.org.uk/potsedm

#EarlyDayMotion #RaisingAwarenessOfPoTS #PositiveChange #PosturalTachycardiaSyndrome #UKPolitics

Do you live in Scotland? 🏴󠁧󠁢󠁳󠁣󠁴󠁿

Please consider contacting your Member of the Scottish Parliament (MSP) and ask them to support people living with PoTS.

We’ve created a simple email template to make it easy for you to contact your MSP and encourage them to... attend the PoTS UK drop-in session at Holyrood on 30th September.

Your voice can help us raise awareness of PoTS and highlight the need for better support and care across Scotland.

👉 Email your MSP today:

https://potsuk.eaction.org.uk/holyrooddropinsession

Thank you for helping us make sure PoTS is heard in the Scottish Parliament.

#Scotland #Holyrood #RaisingAwarenessOfPoTS #LivingWithPoTS #PosturalTachycardiaSyndrome

🎮💜 REMINDER: Calling All Twitch Streamers! 💜🎮

Are you a Twitch streamer looking to make a difference?

On 17th October, PoTS UK is planning a 12-hour charity Twitch event, and we’re looking for 12 streamers to each take over for one hour to help raise awareness and ...funds for people living with Postural Tachycardia Syndrome (PoTS).

Whether you stream gaming, art, music, crafting, speedruns, Just Chatting, or something completely different, we’d love to hear from you! No matter the size of your community, your support can make a real impact. 💜

📧 Interested in getting involved? Email admin@potsuk.org for more information and to register your interest.

📅 We’d love to hear from you by Friday 31st July so we can start planning the event very soon!

💜 Know a Twitch streamer who might be interested? Tag them in the comments or share this post to help us spread the word!

#Twitch #TwitchStreamer #CharityStream #GamingForGood #StreamerCommunity

Congratulations to Dr Lesley Kavi on 10 years as Chair of PoTS UK! 💜

Today we’re celebrating an incredible milestone and saying a huge thank you to Dr Lesley Kavi, who has been Chair of PoTS UK for the past 10 years.

Lesley has been dedicated to PoTS UK as a trustee for over ...15 years, helping to transform awareness, deliver education and offer support to people living with PoTS.

After studying medicine in Glasgow, Lesley worked as a GP and university lecturer before retiring in 2022 to dedicate even more time to the charity. Throughout her career, she has been passionate about improving the understanding of PoTS among healthcare professionals and making life better for patients.

Lesley co-edited the UK’s first medical textbook on PoTS and continues to play a leading role in developing national guidance on PoTS. She regularly teaches healthcare professionals from a wide range of backgrounds, helping to improve diagnosis and care across the UK.

Lesley’s vision is simple but powerful: that every healthcare professional recognises PoTS and has the knowledge and confidence to diagnose and manage it effectively.

Thank you, Lesley, for your unwavering commitment, leadership and compassion over the past decade. Your dedication has made a lasting difference to the lives of so many people in the PoTS community.

Please join us in congratulating Lesley on this remarkable milestone!

#ThankYou #Dedication #Congratulations #PoTS #PoTSCommunity

📅 Save the Date!

💜 PoTS UK In-Person Peer Support & Practical Advice Event
🗓️ Sunday 15th November
🕐 1:00pm – 5:30pm
📍 Stratford-upon-Avon, Warwickshire
💷 £5 per person (includes a hot drink and cake!)

Join us for a relaxed afternoon of ...peer support, practical advice and inspiring talks from healthcare professionals and people living with PoTS.

Whether you’re newly diagnosed or have been managing PoTS for years, this is a welcoming opportunity to:

✨ Meet others who truly understand
🎤 Hear from Dr Lesley Kavi and Dr Helen Eftekhari, followed by a Q&A
💜 Listen to personal PoTS stories and practical management tips
☕ Enjoy refreshments and friendly conversation

The event is open to anyone aged 16+, and you’re welcome to bring one family member or friend (each attendee will need their own ticket).

🎟️ Venue details and ticket booking information will be shared soon – keep an eye on our social media!

#PeerSupport #PatientSupport #CommunityMatters #SocialTime #ChanceToChat