Stories

I was diagnosed with PoTS and Ehlers-Danlos syndrome (EDS) roughly two years ago now.  Like many of the stories on this website, I too had...

I have learned to look at the world as a huge classroom and adapt my thinking to the fact that a building does not define the word ‘education’...

Throughout my teenage years I was prone to syncope but it was put down to my age. In September 2011, I became very unwell and spent a few weeks in a...

My name is Sadie, I am now 19 years old and have suffered with PoTS for six years. How it all started was when I was up the city shopping one day I...

My name is Lizzie, I’m sixteen years old and this is my story.  I’ve had POTS for quite a while now, about four years, but it’s only been...

Living with a PoTSy. As the partner of a POTS sufferer, you have to accept that it will impact all areas of your life. No matter how normal your...

I started suffering from POTS symptoms around the age of 14. I always felt tired, out of breath and seemed extremely unfit when it came to P.E at...

Sitting here typing up my life story I can’t quite believe that I am willing to share it as I am the sort of person who always answered, “I’m...

Hi everyone, I’m Jenny from Newcastle & I’m 21. If my story helps just one of you, it’ll be worth sharing.My story began aged 13 when I...

Hi, my name’s Johnny, I’m 26 and I’m from Hertfordshire.  I wanted to share my story purely to share it with others who also have been...