Stories

My name is Layla and I am 18.I believe I developed PoTS at age 14, but only became aware of the condition and was diagnosed when I was 17. When I was ...

Hello, my name is Elsie. I may seem like your typical teenager but that’s not quite how it is! Not being believed… I started getting heart...

My name is Eleanor.  I am 16 years old, I developed PoTS and EDS when I was 11 and was finally diagnosed at the age of 13. PoTS has drastically...

Hi, my name is Kara and I am 22 years old. My PoTS symptoms began around the age of 13 while I was at school. I remember feeling very hot and...

In June 2021, I stood up to give my partner a hug and passed out in his arms. I considered that this was just a one-off; that maybe I was dehydrated...

Hi, my name is Tiffany and my PoTS story started in the winter of 2019 and so I can’t even blame Long-Covid; both a relief and a curse, as I was...

Hi, I’m Amber and I am 21 years old. For me, my PoTS journey began in December 2021. I just remember going from a healthy, cheerful person who was...

My Experience With PoTS – In 2017 I became unwell and was diagnosed with Dysautonomia. With this condition, it was Postural Orthostatic...

Hi, My name is Natalya, I’m 20 years old and have recently been diagnosed with PoTS.  I believe that I been suffering with PoTS for the...

My name is Sophie and I’m 26 years old. My PoTs symptoms started 8 years ago. When I was 18 years, I went to sleep one night and woke suddenly...