Jenny

I was misdiagnosed for 5 years to be told it was anxiety. It all started half way through my pregnancy, I began passing out when laying flat on my back.  I remember arguing with the doctors, telling them I didn’t get anxious standing up washing my dishes so why is my heart racing so fast.

6 and a half years later, a doctor suggested PoTS. I’ve been for an ecg and blood pressure monitor but still awaiting results. I was put on beta blockers which isn’t managing the symptoms very well. I am still awaiting more tests.

The symptoms are extremely different to when it first started. I am passing out a lot more, my resting bpm is 54 but the minute I stand it can rise from anything between 110 to 150s on beta blockers.  Living with this condition aswell as MS and a sleep disorder makes life very difficult. I pass out when sleep walking. 

Getting my daughter dressed in the mornings is the hardest as my symptoms are much worse in the morning. I can be getting her dressed and my fitbit is telling my I am doing a work out from my heart racing so fast. 

I look forward to the day, the doctor finally finds something that works to make life more manageable. And more GPs definitely need to be aware of this condition.