Website and Social Media-Disclaimers and Rules
We respectfully ask that you take great care in reading the following information to help PoTS UK keep running as smoothly as possible.
Website Disclaimer
The purpose of PoTS UK website is to provide information. You must not rely on the information on this website as an alternative to medical advice from your doctor or other healthcare professional. You must always consult your doctor or healthcare professional if you have any concerns about your medical condition, diagnosis or treatment.PoTS UK is not responsible or liable, directly or indirectly, for any damages resulting from the use of information contained within this site. PoTS UK may occasionally contain errors and the content is reviewed regularly. However, we reserve the right to make changes at any time and without notice when such errors are noted. This Website contains hyperlinks to Websites operated by parties other than PoTS UK, but this does not imply endorsement of their content. PoTS UK does not control such Websites and is not responsible for their contents. Not all information on the internet is correct or up to date and you should not base any decisions about your health or treatment only on information from the World Wide Web. PoTS UK are not able to guarantee the accuracy of the translations when using the Google translate functionality. Please check any medical information that you acquire from our website, through Google translate, with your doctor.
Website Use Limitations
This Website is for your personal and non-commercial use. You may copy information pages and leaflets from this website for your own use, but you may not modify, publish or sell any information obtained from this Website
Social Media
Rules
PoTS UK will use various platforms of social media, Facebook, Instagram and Twitter for example, to update supporters of our work. We promote positive communication from member including thoughts, ideas, questions and links that we consider may be of benefit to others.
Many people who use our social media pages may be just as unwell as you are/were. Please be supportive of your fellow PoTS UK members and if you disagree with their opinion, please do so in a thoughtful and respectful manner.
Remember that young children may view any social media page.
The moderators of the pages will correct/clarify or remove any posts which are unclear, or not supportive of current medical evidence. Please do not post the following:
- Advertisements for non-evidence based or illegal products
- Promotion of services or products, unless deemed appropriate by the administrators
- Fundraising for personal use
- Use of inappropriate language
- Posts that provide medical advice or attempt to diagnose
- Argumentative or hostile posts
- Where medical professionals and others are spoken of negatively
- Users who actively promote information that is not evidenced based or considered good practice (we accept that current management of PoTS has a limited evidence base and often based on the experience and opinion of medical professionals)
- Posts that include copyrighted materials
Disclaimer
Inclusion of a post does not imply that we (PoTS UK) endorse the views/opinions of the poster.
You are responsible for your own medical care, treatment, and oversight. All of the content provided in PoTS UK social media pages or on our website (“the content”) is for informational purposes only, does not constitute the providing of medical advice and is not intended to be a substitute for independent professional medical judgment, advice, diagnosis, or treatment. The content is not intended to establish a standard of care to be followed by you and you understand and acknowledge that you should always seek the advice of your doctor or other qualified health provider with any questions or concerns you may have regarding your health. You also understand and acknowledge that you should never disregard or delay seeking medical advice relating to treatment or standard of care because of information contained in our pages.
Privacy
Protect your own privacy and that of others. Once posted or shared, the administrators cannot always remove posts.
Remember that our social media is an open platform and can be viewed by anyone.
How to contact the administrators
If you have any questions or concerns or disagree with any decisions made by the administrators, please contact info@potsuk.org.
We respectfully ask that you abide by these rules which have been developed to protect our users, the PoTS community and the PoTS UK charity.
Anyone who refrains from adhering to any of the above rules may have comments removed without prior notice and/or be barred from our social media platforms.