Basingstoke Team Parish

Read Our Patient Stories

Some of our members have shared their experience of PoTS. Stories describe how their PoTs began and the road to a diagnosis. Sharing your story helps others to find the best way forward when confronted with the difficulties that PoTS presents.

If you would like to share your story with us please get in touch ...

Flora: Raising awareness about the connection between PoTS and poor sleep/UARS....My Personal Story of Recovery

My name is Flora, I am a 32 year old PhD Student and I would like to share my personal story of how I recovered from PoTS/OI, as I believ...

Phoebe:

In late April 2012, studying in Malaysia on an exchange with my University, I contracted Dengue fever, ending up in hospital for 10 days....

Becky: What doesn't kill you makes you stronger.. literally!

My name is Becky Lambert and I’m currently studying at The University of Leeds. Growing up I was always very active and agile; gymnasti...

Laura: How Exercise Has Helped Me

My name is Laura Maple; I am 22 years old and am currently a third year biomedical science student studying at The University of Sheffiel...

Charles:

It all began in October time of 2014, I was studying for my diploma in Computer Networking & Architecture. I had always been fit and wel...

Aaron: My Experience with PoTS

Late 2012, when I was 11 years old, I started getting a series of reoccurring migraines, which would last a short period of time. I thou...

Emma: A day in the life of a PoTS mummy

Imagine struggling to get out of bed every morning, like you have a terrible hangover, you just don’t want to open your eyes, but you h...

Ellie: The Start of a New Beginning

My PoTS story all began with me having a Tonsillectomy. Unfortunately, my recovery didn’t go smoothly, and found myself back in hospita...

Jenna: It’s just a bad day – not a bad life!

My Name is Jenna Robinson, I am 25 from a small village near Omagh in Co Tyrone. Within the past year and a half I have been diagnosed wi...

Stefania: "Stars can't shine without darkness"

It was a Thursday morning in November and I got up to get ready for school. I began to feel unusually tired, dizzy but in a way I've neve...

Molly: Let PoTS empower you, not overpower you

I wanted to share with you my story of PoTS, to inspire any suffers out there that endurance, courage and bravery are the key to a health...

Zoe: Acceptance is the hardest part and until you learn to accept, you'll never move forward with your life.

March 2014 my life changed forever. A full time working mum, with two teenagers, two dogs, a wonderful husband and life. My life was live...

Laura: Every day may not be good..... but look for something good in every day

Up until April 2015, I lived a pretty normal life. I have suffered with chronic headaches for the last 18 months and have had high blood...

Charlotte: What It's Like To Live With PoTS

In June of 2014 I collapsed to the floor, clenching onto my chest as a result of an excessive heart rate my body was suffering from. I ha...

Helen: Cycles for charity with PoTS

My PoTS story started in July 2012, 6 weeks after getting married. My heart was constantly racing and I felt so tired.

Madeline Dyer: PoTS won't stop me being a writer!

From a young age, I always had some strange symptoms--symptoms that doctors could never provide an answer for, and symptoms that many bel...

Becky: If it wasn't for the darkness we wouldn't see the stars

I am 23 years old initially was diagnosed with low blood pressure and syncope in 2012, and this year my diagnosis was changed to PoTS as ...

Christy: It took an admission essay for a teaching course to make me realise how far I have actually come with PoTS.

In hind sight most people wouldn't change what they have experienced throughout their lives. Some people argue life experiences make a pe...

Joanna: The only way is up!!

My name is Josey, I am 21 years old and have suffered with PoTS since the age of 13. I am finally in a place in my life where I am able t...

Mary: It can only go up from here !

I am 18 years old and have been fully diagnosed with PoTS for a year now. When I was first diagnosed I did so much research into it and o...

Chris: The DMX DJ

Where do I start... I used to be so active, working on the funfair, working in my local nightclub as the lighting technician and warm up ...

Danielle: Coping with Pregnancy

Hi I am Danielle I am 23 years old and had good health until I started collapsing at the age of 20 were I was diagnosed with PoTS and Ina...

Hannah: Getting on with life

I had my first faint at 17 getting out of the bath, I felt my heart flutter at what felt liked 200bpm, I became dizzy, sick and slowly my...

Abbie: Invisible Friends

My name is Abbie, I am almost 24 years old and I would like to share my story with you all. I was a relatively well child but did suffer ...

Abigail: Fundraises for PoTS UK

Everyone's story of PoTS is completely different and mine is no different to that. I just woke up one day, 21st May 2013, tried to get ou...

Lucy: Making Progress

I was an active 47-year-old mother of three teenagers, working as a university professor and playing regular competitive tennis when I fe...

Kristina: Incorrect diagnosis of PoTS

I am Kristina, I am 28 years old and this is my story of my struggle with PoTS. Going from my highest to my lowest within the space of a ...

Sarah

I expect my story begins like most. I was 23. I was working as a nurse in a job I loved, surrounded by great friends and family. Life was...

Johnny: PoTS has changed my life but not over taken it.

Hi, my name's Johnny, I'm 26 and I'm from Hertfordshire. I wanted to share my story purely to share it with others who also have been af...

Jenny: Growing up with PoTS

Hi everyone, I'm Jenny from Newcastle & I'm 21. If my story helps just one of you, it'll be worth sharing. My story began aged 13 when I...

Alan

I suffer from Anti-Phospholipid Syndrome and Idiopathic Chronic Pancreatitis, but this didn't explain my symptoms. I had been investigate...

Clare: Adjusting daily life with PoTS

I was diagnosed with PoTS and Ehlers-Danlos syndrome (EDS) roughly two years ago now. Like many of the stories on this website, I too ha...

Jennifer: The Prom

The thought of the prom excited me as well as chilled me to the bone. I loved getting dressed up, putting on my make-up and doing my hair...

Home schooling with PoTS and EDS

I have learnt to look at the world as a huge classroom and adapt my thinking to the fact that a building does not define the word "educat...

Lauren: Piecing the jigsaw together - EDS and PoTS

As a child I was always accident prone, would often complain of joint pain and had severe asthma also. My mum tried to convince doctors t...

Kathryn: From Car Crash to PoTS - My Journey

My name is Kathryn Marshall; I am a 38 year old nurse from Swansea South Wales. I am married to Chris and have 3 children, Chloe 9yrs, H...

Laura: From psychogenic seizures to PoTS

Throughout my teenage years I was prone to syncope but it was put down to my age. In September 2011, I became very unwell and spent a few...

Sadie: Life does get better

My name is Sadie, I am now 19 years old and have suffered with PoTS for six years. How it all started was when I was up the city shopping...

Caroline: PoTS a decade on

As everyone with POTS will know, there is no easy cure and I think that I may need to try a variety of treatment methods to find what wor...

Sam: I won't let it stop me!

Getting the POTS diagnosis was a huge relief, just being taken seriously made a huge difference. Pregnancy and breastfeeding were incred...

Lizzie: Teenager with PoTS

My name is Lizzie, I'm sixteen years old and this is my story. I've had POTS for quite a while now, about four years, but it's only been...

Michael: Living with a potsy

As the partner of a POTS sufferer you have to accept that it will impact on all areas of your life. No matter how normal your partner loo...

Laura: Living life to the full in spite of chronic illness

I think I'm coming to terms with having a chronic illness now. I finally got confirmed as having POTS on April 9th. It was a massive reli...

Amy: Mother of two

I started suffering from POTS symptoms around the age of 14. I always felt tired, out of breath and seemed extremely unfit when it came t...

Natalie

I would like to share my story of POTS. This is the first time I have ever sat and written down my story so perhaps this is to help me as...

Catherine: Fainting doesn't have to get you down

My name is Catherine, I am 24 and I live in Surrey with my partner. Until April 2010, I lived a perfectly normal life, and enjoyed my job...

Christina: Developing PoTS during pregnancy and my new life

I developed PoTS within pregnancy of my youngest child. I went from being fairly active and fit, to barely being able to climb the stair...

Lorna: Ski Instructing with PoTS

Sounds crazy....I know it is, but its great fun and I refuse to let POTS get in the way of my fun. It's a struggle, but worth it. Sounds...

Liam: My Short Diagnosis Novel

After Education, I set up my own business as a self-employed photographer back in 2007 and have been working as an outdoor photographer s...

Liz

In July 2008 I started to feel very strange. Not the kind of strange that I was getting a cold, but something I couldn't explain. It was ...