PoTS UK is dedicated to protecting your personal data and being honest and transparent about what information we hold about you and how we process this data. We can assure you we strictly comply with all General Data Protection Regulation so your data is safe with us.
Information that PoTS UK collects about you
We may collect information that you share with us, whether this is collected online when you ‘become a member’, register for a meeting, make a donation, or via phone, email, in letters, face to face, or in any other correspondence. We will look after this personal information; this is central to our values as an organisation.
How we use that information
Collecting relevant data from our donors and volunteers helps us to be more efficient and send you relevant information. If you consented to becoming a PoTS UK member we will use your email address to send you news and information about research, patient meetings, fundraising projects and other issues we consider may be of interest to you. We will communicate with you about our work, including how we are spending your money and how you can continue to support us.
We pride ourselves on our ethical approach to fundraising. PoTS UK has never and will never knock on your door, stop you in the street or ring you to ask for donations. We will never release your information to organisations outside of PoTS UK for their marketing purposes.
How we share and store your information
Information about you will only be shared with PoTS UK employees and volunteers. We take all reasonable care to safeguard your personal information through security policies, encrypted computer equipment and secure business processes.
When you have indicated to us that you would like your question, experience or story shared with others, we will publish this on our website or social media platforms.
We will only pass your details on to others without your consent in exceptional circumstances when it is thought that there is likely to be significant self harm or harm to others.
PoTS can be a long-term condition for some people. We will store your details so that we can update you about PoTS issues of interest to you until you tell us that you would no longer like to receive this information.
Confidentiality will always be respected when you share sensitive information about you or a family member or friend with us. We will only share that information with PoTS UK volunteer advisors that may be able to help you.
Your choices regarding the information you provide to us
You have a right to request a copy of all the information we hold about you. You may request to amend this information or remove it (unless there is a legal requirement for us to keep it). Email email@example.com with your request.
How you can change your mailing preferences
We will make it easy for you to tell us how you want us to communicate with you, including how to opt out from future communications. Your request will be dealt with promptly. Please email firstname.lastname@example.org
You can be confident that:
- We only use personal information in the ways we need to and that is expected of us.
- Our lawful basis is consent and legitimate interest
- We do not sell information about you to anyone.
Additional information for healthcare professionals.
Please be assured that we will not share your personal data with anyone without your consent.
We will not place your details on our list of healthcare professionals without your express consent.
We will direct patients to services where it is public knowledge that a service exists, but we will not share private details such as email address without consent.
We will hold information about you until we learn that you are no longer work or have an interest in PoTS, or until you ask us to remove information about you.
When we provide services, we want to make them easy, useful and reliable. Where services are delivered on the internet, this sometimes involves placing small amounts of information on your device, for example, computer or mobile phone. These include small files known as cookies. They cannot be used to identify you personally. These pieces of information are used to improve services for you through, for example:
- enabling a service to recognise your device so you don’t have to give the same information several times during one task
- recognising that you may already have given a username and password so you don’t need to do it for every web page requested
- measuring how many people are using services, so they can be made easier to use and there’s enough capacity to ensure they are fast
You can manage these small files yourself within your browser settings.
There are two types of cookie you may encounter when using websites:
First party cookies: these are the sites own cookies, controlled by the site owner and used to provide information about usage of the site and possibly help the site’s functionality. www.creativestream.co.uk does not use these cookies.
Third party cookies: these are cookies found in other companies’ internet tools which we are using to enhance our site, for example Facebook or Twitter have their own cookies, which are controlled by them. We use a number of suppliers who may also set cookies on their websites’ on its behalf. www.creativestream.co.uk does not control the dissemination of these cookies. You should check the third party websites for more information about these.
These cookies are used to collect information about how visitors use our site. We use the information to compile reports and to help us improve the site. The cookies collect information in an anonymous form, including the number of visitors to the site, where visitors have come to the site from and the pages they visited.