21st November 2018
Volunteers needed for research on people’s experience of taking medications in people living with long-term health conditions (LTC)
17th October 2018
We are delighted to have just held our first patient meeting in London!
8th September 2018
The second of 2 articles on exercise reviews several journal papers, and includes interviews with Drs Lim and McGregor who examine some of the limitations of existing studies. Dr Raj provides 5 practical pearls for exercise training in PoTS.
The 1st of 2 articles written by Clare Pain examines the similarities between patients with PoTS and astronauts, and includes an interview with Professor Levine.
9th July 2018
You know you have autonomic dysfunction when...” a cartoon book that creates understanding of these complex medical conditions.
2nd June 2018
PoTS UK visit medical Detection Dogs to learn about their incredible work
30th May 2018
So I’m here to tell the tale! I completed the London marathon! Such a great day and amazing opportunity to take part in the world famous event and I had the pleasure of running in the name of PoTs!
30th April 2018
Eva bakes and sells little gem cakes to raise funds for her favourite charities.
8th February 2018
Science Made Simple: A review of a recent paper from Australia that shows that PoTS may be caused, in some people at least, when a gene for removing noradrenaline is switched off.
10th November 2017
Tasmin is a 21 year old MA Public Relations Student. She was diagnosed with PoTS and EDS during her early teens. Tasmin wants to help support people with PoTS and to spread awareness of the condition. She hopes you enjoy the PoTS Christmas cards she helped to create, and wishes to support the charity in the future
3rd November 2017
On 28th October, PoTSUK and EDSUK were delighted to hold a patient day in Leeds, providing a support day for those in Northern England. Attendance was close to 100, with individuals travelling from as far as Glasgow to listen to a variety of speakers who kindly gave up their Saturday to assist.
12th October 2017
The clouds parted and summer returned for one final day just for us!! Supercars, classic cars, modified and custom flooded the grounds, giving an eclectic mix of engine roars!
27th September 2017
On the 26th August, on another bank holiday weekend, myself and 6 friends took on another sponsored walk to raise money for PoTS UK.
17th September 2017
PoTS UK in association with Dr Nick Gall were delighted to host the London PoTS Masterclass 2017. Almost 100 healthcare professionals attended to listen to both our UK specialists, and speakers from the USA, Canada, Sweden, Denmark, Finland and Germany. This would not have been possible with out the hard work of our fundraisers.
18th July 2017
PoTS UK Chair Lorna Nicholson, after much though, has decided to step down from leading our organisation.
23rd May 2017
On Friday 19th May 2017, a ‘PoTS for Patients’ event was held within the Education Centre at the Royal Victoria Infirmary in Newcastle upon Tyne. Organised by the PoTS UK charity, patients were welcomed by a number of medical professionals, who attended in order to deliver informative presentations and provide expert knowledge to individuals with Postural Tachycardia Syndrome.
7th February 2017
PoTS UK have a lot of plans underway to initiate and promote research and awareness in 2017.
6th January 2017
Please help Georgina with her study looking at how people with PoTS cope with their illness and whether this influences quality of life.
1st December 2016
Jenny Welford, an Occupational Therapist has had her study Published in the British Journal of Cardiology.
2nd November 2016
Turning 40 Never Felt So Good! “For my 40th, I wanted to have 3 days of fun with friends, family, customers & associates but above all make it really mean something – raise as much money as possible for charity with an initial target of £10,000”, Ciro Ciampi
29th October 2016
Jenny Welford presents the results of her research at the Heart Rhythm Congress 2016
25th October 2016
Dr Robert Sheldon receives prestigious award in Canada
24th October 2016
Dr Jane Simmonds joints our team at PoTS UK as a Physiotherapist medical adviser.
17th October 2016
PoTS UK and a number of members attended the Heart Rhythm Congress (HRC) 2016. This is an annual event and is staged in Birmingham
1st October 2016
On the 27th August, bank holiday weekend, myself and three friends took on a challenge of walking for a straight 24 hours to raise money for PoTS UK. As I have been suffering with PoTS for over 3 years - but only diagnosed in February, we all thought it was time to take action and do an event to raise money and more importanly awareness for this condition.
PoTS UK attended the UK CFS/ME Research Collaborative (CMRC) Conference in Newcastle this week. This collaborative was established in 2013 as a working group of researchers, research funding organisations and ME/CFS charities. The aim is to produce high quality research into CFS/ME.
9th May 2016
We are delighted to announce that runners up were Andrea Faber, Coral Munro and Victoria Payne (who all receive a shopping tote donated by Ella Woodward) with the overall winner (a PoTS UK hoodie coming her way) being Pamela Newman.
27th April 2016
1st support group meeting held in Coventry
18th April 2016
We were delighted that our first PoTS UK ‘5 elements’ retreat (Cotswolds Water Park Hotel, April 11th-12th) was so well attended. 84 delegates, some from as far afield as Canada were treated to a variety of talking-heads talks, interactive workshops, lifestyle tips and wellness treats in this stunning lakeside location.
23rd March 2016
Following an inaugural coffee morning and jam sale last year, which raised over £1000 for Pots UK and EDS UK, and a subsequent choir concert which raised over £2000, two mum's from a small village in South Wales have brought in another £1000 from a second coffee morning and marmalade sale held on 12 March 2016! Alison Appleby and Gaynor Lloyd Williams from Creigiau near Cardiff, both have daughters (Ruth Appleby and Dawn Conrad) who suffer quite severely with both of these conditions.
20th March 2016
On 13th March I did the Bath Half Marathon Fun Run in my wheelchair to raise money for two fantastic charities - Macmillan Cancer Support and POTS UK
2nd March 2016
The British Journal of Cardiology has published the results of a survey of UK PoTS patients
13th January 2016
Help yourself stick to those ailing New Year's resolutions about a balanced, self-caring, self- compassionate healthy-maximizing 2016
26th October 2015
We would like to welcome Michaella Nuttall to our little team at PoTS UK, as a trustee. Michaella came on board over one year Michaelaago and has been a huge asset to our team. Inparticular Michaela has set up our Parent support groups and face book page.
19th October 2015
Includes news of Patients Day
15th September 2015
PoTS UK organised the first meeting for healthcare professionals dedicated to PoTS in London yesterday.
7th July 2015
The Heart Rhythm Society release new statement on PoTS, inappropriate sinus tachycardia and vasovagal syncope.
15th June 2015
A huge thank you to Gaynor and Alison for organising this event.
27th May 2015
A big thank you to everyone who completed our survey.
18th May 2015
If you have PoTS please complete this survey by 24th May 2015
22nd April 2015
PoTS UK introduce new travel grant for PoTS experts.
26th March 2015
PoTS UK are honored and delighted to have Darling Clothing as a supporter ... We will hand over sales and distribution of PoTS merchandise including wristbands, which should be available shortly
23rd March 2015
PoTS UK would like to express their huge thanks to the Barnes Charity Ball Committee (pictured below with PoTS UK trustee Morwenna in gold) Many months of careful planning, creative efforts and hounding friends and acquaintances for actionable prizes - resulted in a superb night of medieval frolics and mayhem - and an impressive sum raised for 5 charities, including PoTS UK.
8th January 2015
As of 6 January 2015, PoTS UK has been registered with the charity commission of England and Wales.
19th December 2014
The new PoTS Booklet is now available.
7th December 2014
PoTS UK first ever Parents of People with PoTS meeting took place on a very rainy Sunday at the end of November. 13 parents attended and spent the afternoon discussing how the journey had been for them and their family and how could they use their experiences to help others.
6th December 2014
Queen Mary's High School are inspired by ex-pupil with PoTS to raise £3350
16th October 2014
The PoTS UK team enjoyed attending STARS Patient Day and meeting some of our members there. As ever, some of the most powerful presentations were delivered by patients sharing their journey to find appropriate help and support.
10th October 2014
Peter Capaldi is the new Doctor in Doctor Who. He recognises the challenges faced by people with PoTS and is supportive of PoTS UK.
14th September 2014
You have been asking for them...and finally THEY ARE HERE! (and they look great!).
22nd July 2014
PoTS UK is developing a number of projects that aim to improve services and quality of life for people with postural tachycardia syndrome.
14th July 2014
Read about the latest research, therapy dogs, the iv saline debate and how to be a chronic babe.com
2nd July 2014
Karen, one of our members, kindly shared her story with the Scottish Sunday express
22nd June 2014
Professor Newton and her Newcastle team, in association with PoTS UK studies characteristics of patients with PoTS.
19th May 2014
On the evening of the 12th May, Chandos House, the beautiful historical headquarters of the Royal Society of Medicine, tucked behind Oxford Steet in London, was filled with candles, flowers and sixty attendees intent on raising awareness of, and funds for, PoTS-UK.
23rd April 2014
Dr Satish Raj, one of PoTS UK medical advisors, is conducting research into the role of the immune system in some types of PoTS.
11th March 2014
Researchers have discovered a possible autoimmune cause of PoTS
18th January 2014
Wishing PoTS UK chair, Lorna, and her new husband Simon a happy future together.
7th January 2014
A big thank you to Jaime who is one our or members and raised over £250 for PoTS UK
24th December 2013
Kathryn, one of our members has shared her story with the daily mail.
26th October 2013
Anti depressants can be used to help with PoTS symptoms
3rd July 2013
New, second edition of Hannah Ensors cartoon book "You know you have PoTS when......" is now available
21st June 2013
Read our new leaflet on living with the symptoms that low blood pressure can cause some people, and what you can do to help.
2nd June 2013
Every 3-4 months, we will review the medical journals and update our members with any advances in knowledge about PoTS.
29th May 2013
22 year old Chelsey Reynolds was a trainee nurse and part-time model when her life was dramatically altered by PoTS.She tells her story in the Daily Mail Online
22nd May 2013
Life can be a struggle but I'm still smiling.
We have produced a new section on our website on Midodrine, a drug commonly used to treat PoTS
3rd April 2013
The Specialised Healthcare Alliance is an organisation of patient groups and campaigns on behalf of patients with rare and complex medical problems.
5th March 2013
PoTSUK have updated their PoTS information flyer which includes an image of a person who has PoTS.
23rd February 2013
PoTS UK was certified by the Information Standard on 18th February 2013.
17th January 2013
Lorna has had another journal article published in the Nursing Standard entitled "Diagnosis and management of Postural Tachycardia Syndrome"
30th December 2012
To all PoTS UK members from the PoTS UK team
1st November 2012
Our latest newsletter is ready for viewing
9th October 2012
Melloney Ferrar,cardiology specialist nurse, received an award at the Heart Rhythm Congress 2012 for her work in setting up and running a PoTS Clinic
25th September 2012
STARS Patient Day was held in Birmingham on Sunday 23rd September.There were several talks by experts on PoTS and opportunities for patients to ask questions.
7th September 2012
Thank you to all of you who have completed the questionnaire for Julia Newton. POTSUK members have completed a total of 96 questionnaires which is amazing.
12th August 2012
PoTS UK is delighted to announce Rossif Sutherland as our new celebrity patron.
7th August 2012
Rachel as a patient and Lesley as a GP with an interest in PoTS had the opportunity to speak about PoTS on BBC Radio WM.
31st July 2012
Rachel has PoTS and was interviewed today on BBC Radio Derby. She described how PoTS affects her life and her recent walk up Snowdon to raise funds for PoTSUK and STARS.
9th July 2012
Saturday 7 July 2012, 9 of us (three of whom have PoTS) and one dog set out to walk up Mount Snowdon in Wales. It is the second highest mountain in the UK at 1085 meters high. The goal was to raise money for both STARS and PoTS UK.
27th June 2012
PoTS UK is committed to fully participating in the department of healths accreditation scheme for health care information.
1st April 2012
We are now affiliated to STARS
1st March 2012
We would like to welcome Dr Satish Raj and Professor Julia Newton amongst our team of medical advisors. PoTS UK Teens face book group has been set up for those under 18 to meet and chat.
1st February 2012
PoTS UKs spring news letter is now available
We are now registered with the HMRC
Patient UK Leaflet
1st January 2012
We would like to welcome Dr John West and Professor Mike Gammage as Patrons of PoTS UK Dr John Purvis has also agreed to be one of our medical advisors.
1st October 2011
Second news letter
1st January 2011
PoTS UKs first newsletter