Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
Hi my name is Ellie and I’m a nursing student at Surrey University. I have been diagnosed with PoTS for almost four years now and it is an experience I will take through my training to help others.
Volunteers needed for research on people’s experience of taking medications in people living with long-term health conditions (LTC)
We are delighted to have just held our first patient meeting in London!
The second of 2 articles on exercise reviews several journal papers, and includes interviews with Drs Lim and McGregor who examine some of the limitations of existing studies. Dr Raj provides 5 practical pearls for exercise training in PoTS.