Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
Hello my name is jess I’m 23, I first started with pots symptoms around 12/13 feeling constantly tired my mum even said I could have fell asleep at the door if I wanted to in a morning whilst getting ready as I was always wanting to sleep. I also wasn’t the typical teen in the way of health I used to constantly pick up bugs and the...
You know you have autonomic dysfunction when...” a cartoon book that creates understanding of these complex medical conditions.
PoTS UK visit medical Detection Dogs to learn about their incredible work
So I’m here to tell the tale! I completed the London marathon! Such a great day and amazing opportunity to take part in the world famous event and I had the pleasure of running in the name of PoTs!