Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
My PoTS story started in July 2012, 6 weeks after getting married. My heart was constantly racing and I felt so tired.
We would like to welcome Michaella Nuttall to our little team at PoTS UK, as a trustee. Michaella came on board over one year Michaelaago and has been a huge asset to our team. Inparticular Michaela has set up our Parent support groups and face book page.
Includes news of Patients Day
PoTS UK organised the first meeting for healthcare professionals dedicated to PoTS in London yesterday.