Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
I had my first faint at 17 getting out of the bath, I felt my heart flutter at what felt liked 200bpm, I became dizzy, sick and slowly my hearing and vision became a blur. I woke up on the bathroom floor some time later.
As of 6 January 2015, PoTS UK has been registered with the charity commission of England and Wales.
The new PoTS Booklet is now available.
PoTS UK first ever Parents of People with PoTS meeting took place on a very rainy Sunday at the end of November. 13 parents attended and spent the afternoon discussing how the journey had been for them and their family and how could they use their experiences to help others.