Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
My name is Laura Maple; I am 22 years old and am currently a third year biomedical science student studying at The University of Sheffield. I am diagnosed with hypermobile Ehlers Danlos Syndrome and suspected PoTs.
PoTS UK have a lot of plans underway to initiate and promote research and awareness in 2017.
Please help Georgina with her study looking at how people with PoTS cope with their illness and whether this influences quality of life.
Jenny Welford, an Occupational Therapist has had her study Published in the British Journal of Cardiology.