Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
My PoTS story all began with me having a Tonsillectomy. Unfortunately, my recovery didn’t go smoothly, and found myself back in hospital terribly sick, with a blood clot and infection after suffering a server haemorrhage. I cannot be certain but I believe this all triggered PoTS for me, from then out I felt extremely tired and ligh...
We are delighted to announce that runners up were Andrea Faber, Coral Munro and Victoria Payne (who all receive a shopping tote donated by Ella Woodward) with the overall winner (a PoTS UK hoodie coming her way) being Pamela Newman.
1st support group meeting held in Coventry
We were delighted that our first PoTS UK ‘5 elements’ retreat (Cotswolds Water Park Hotel, April 11th-12th) was so well attended. 84 delegates, some from as far afield as Canada were treated to a variety of talking-heads talks, interactive workshops, lifestyle tips and wellness treats in this stunning lakeside location.