Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
I can live my life with this condition and make it a good life, full of great times- the stuff of wonderful memories, so when I'm old in my rocking chair looking back at it all I can think, I lived WELL. Oh yes. That I will do, no matter WHAT.
Science Made Simple: A review of a recent paper from Australia that shows that PoTS may be caused, in some people at least, when a gene for removing noradrenaline is switched off.
Tasmin is a 21 year old MA Public Relations Student. She was diagnosed with PoTS and EDS during her early teens. Tasmin wants to help support people with PoTS and to spread awareness of the condition. She hopes you enjoy the PoTS Christmas cards she helped to create, and wishes to support the charity in the future
On 28th October, PoTSUK and EDSUK were delighted to hold a patient day in Leeds, providing a support day for those in Northern England. Attendance was close to 100, with individuals travelling from as far as Glasgow to listen to a variety of speakers who kindly gave up their Saturday to assist.