Basingstoke Team Parish

Postural Tachycardia Syndrome - Raising Awareness of PoTS

Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition.  Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down).  Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing. 

Postural Tachycardia Syndrome PoTS Stickman

Who are we?

PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.

The aim of PoTS UK

We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.

Ben:

I guess I have always been the outdoors type, if I'm outside I'm a happy guy! Five years ago a few of my best friends were doing a ski season in Canada, it sounded amazing so I decided to go. After three months of amazing snowboarding I was walking down the high street when my heart went crazy beating out of my chest, At the time I tho...

Latest news View all

  1. London PoTS Masterclass 2017

    PoTS UK in association with Dr Nick Gall were delighted to host the London PoTS Masterclass 2017. Almost 100 healthcare professionals attended to listen to both our UK specialists, and speakers from the USA, Canada, Sweden, Denmark, Finland and Germany. This would not have been possible with out the hard work of our fundraisers.

  2. Lorna Steps down as Chair of PoTS UK

    PoTS UK Chair Lorna Nicholson, after much though, has decided to step down from leading our organisation.

  3. Newcastle PoTS Day

    On Friday 19th May 2017, a ‘PoTS for Patients’ event was held within the Education Centre at the Royal Victoria Infirmary in Newcastle upon Tyne. Organised by the PoTS UK charity, patients were welcomed by a number of medical professionals, who attended in order to deliver informative presentations and provide expert knowledge to individuals with Postural Tachycardia Syndrome.

Upcoming event View all

  1. EDS Support UK and HMSA Weekend Conference

    Tickets are now available to attend the forthcoming Ehlers-Danlos Support UK & Hypermobility Syndromes Association ‘Management and Wellbeing Conference

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