Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating chronic health condition. Simply standing up can be a challenge for people with PoTS as their body is unable to adjust to gravity. PoTS is characterised by orthostatic intolerance (the development of symptoms when upright that are relieved by lying down). Symptoms include headaches, fatigue, palpitations, sweating, nausea, fainting and dizziness and are associated with an increase in heart rate from the lying to upright position of greater than 30 beats per minute, or a heart rate of greater than 120 beats per minute within 10 minutes of standing.
PoTS UK was founded by a group of individuals with PoTS who had a desire to increase awareness of this condition. We now benefit from the support and guidance of a number of doctors and specialist nurses with an interest in this field.
We aim to support and encourage individuals with PoTS. We hope to educate family, friends and medical professionals within the United Kingdom to this widely unknown and misdiagnosed condition by means of sharing up to date medical research and resources. PoTS UK desires to offer hope that life can be enjoyed while living with this health condition.
Phoebe here currently sat in Rio De Janrio counting my lucky stars. I'm four months into travelling while managing being in remission from PoTS and ME, with a big old wash bag full of pills and medication ready for anything these illnesses might try to throw my way in the months to come. I'm trying to travel to every country in the wo...
The clouds parted and summer returned for one final day just for us!! Supercars, classic cars, modified and custom flooded the grounds, giving an eclectic mix of engine roars!
On the 26th August, on another bank holiday weekend, myself and 6 friends took on another sponsored walk to raise money for PoTS UK.
PoTS UK in association with Dr Nick Gall were delighted to host the London PoTS Masterclass 2017. Almost 100 healthcare professionals attended to listen to both our UK specialists, and speakers from the USA, Canada, Sweden, Denmark, Finland and Germany. This would not have been possible with out the hard work of our fundraisers.